Introduction: In 2023, the Swedish National Board of Health and Welfare received a government assignment to develop a national guideline, aimed at ensuring education and best practice guidance about the organ donation process were consistent across the country. Target group were healthcare professionals working in hospitals where potential organ donors could be identified. The aim was to ensure that knowledge about how to identifying and care for potential organ donors were established and consistent in ICUs across Sweden.
Method: Participatory Action Research (PAR) approach was adopted, emphasising the value of experiential knowledge to addressing practical challenges and facilitate change. PAR involves the active participation and leadership of those directly affected by an issue, generating new knowledge and driving improvements in systems and practices. A technical solution was approved, to fulfill the aim of the project.  
Throughout 2024, the national project group worked at national, regional, and local levels to identify key action points and address challenges faced by healthcare professionals. The initiative included six national meetings,18 regional in-person meetings, and two national congresses with broad  representation. Additionally, a referral process involving 150 stakeholders provided valuable feedback prior final publication. All input was carefully evaluated and the guideline was subsequently adapted to meet the specific needs.
Results: On December 9, 2024, the National Board of Health and Welfare launched the national guideline, “Donationsguiden,” a digital learning platform for organ donation, available both as an app and a web-based platform, designed for the healthcare professionals working with potential organ donors. “Donationsguiden” was successfully implemented following a strong engagement and anchoring during the development and implementation. First week, the guideline achieved over 1,500 downloads at App- and Playstore, and 1200 actions per day without any additional publicity. Six month later, “Donationsguiden” has exceeded 12,000 downloads and the platform activity closely reflects the clinical work with the number of active cases of potential organ donors across the country, as evidenced by user statistics and interaction data.
Conclusion: The key to successful implementation appeared to be strong relationships early on, and maintained throughout the project. PAR proved to be an effective method for achieving a smooth rollout of the national guideline. Ongoing dialogue, discussion and collaboration between the authority and the healthcare community, was crucial in developing the platform to effectively deliver education as well as providing and maintaining best practice guidance to the healthcare providers. This product is expected to contribute to more life-saving transplants in Sweden by establish the education level and thereby reducing the number of missed organ donors in the future.